Just As Important?

IT’S WORLD MENTAL HEALTH DAY TODAY.

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Chances are you’ve seen a plethora of posts on social media raising awareness about today specifically and of course mental health importance throughout our lives in general. I am always overwhelmed at the outpouring of love and raw honesty most wonderful people on my friends/follow lists show at this time of the month. I recognise that there are still massive stigmas surrounding mental health and for some it’s still a taboo subject to talk about but I’d like to think that things are getting better, more open, people are becoming more supportive and understanding. Perhaps I’ve been luckier than most. I have been able to access counselling through my GP when needed, I had friends and family who were supportive even if they couldn’t understand my situation, workplaces have been flexible and kind, my online community have been amazing. I still felt alone, scared and awful at times but I also felt a lot of love.

WHAT ABOUT THE KIDS?

One thing I have personally noticed is the idea and opinion of children’s mental health seems to be a lot more changeable. As some of you may know our youngest son has Autism. We decided to home educate him a few weeks ago. This may seem like a sudden decision but believe me it’s been a long time coming… we just didn’t feel like we could talk to many people about it properly.

Back in the day, most toddler groups we went to with him were a disaster and would begin or end with a terrified or stressed out meltdown of emotions and tears.

For most mornings of his year of pre-school sessions he was a crying anxious mess. This only began to change slowly in the very last weeks before we left for him to start his journey into Reception but most of it was a raw and hard emotional roller coaster.

For most mornings of his just past Reception year he was again a crying anxious mess. He hated going in to school and slight changes to that routine would be yet another thing to tip him over the edge. We knew what to expect this time but it didn’t make it any easier. He started to form a few friendships but for the most part was pretty solitary and very quiet at school… and easily overlooked due to that. In a busy class of 29 other children, merged with another class of 30 other children and often only two or three amazing but stretched adults looking after them all, he was easily missed when upset or injured. Some of the friendships forming were not of his choice, nor positive due to his social communication issues. He was having most of his work done by other children, he had to leave a lunchtime SEN club due to the disorganisation stressing him out more than it was supposed to help, he was coerced in to social play situations he was not comfortable with repeatedly, he withheld toileting, becoming obsessional about more and more things and his mood swings were severe at home. Without guidance and support all of this and more was continuing and severely impacting his mental health. We had the summer holiday break and it was like we got our little boy back. He was so stress-free, the anger and tears subsided within a few days, his anxious routines fell away from his brain, his body relaxed, his health and energy increased. It was a joy to see.

Going back into Year One after the holidays was nothing short of horrendous. We had to miss his first week back due to him suddenly coming down with a severe and terrifying ‘allergic reaction’ a few days before the start of term which now seems to be related to stress levels (we’ve got an emergency appointment with an allergy specialist at the local hospital in December) which left him like this for days, even with steroids and antihistamines on the case:

When he eventually did manage to go back, it was so rough. Practically every night was filled with begging not to go to school the following day, him trying to explain to us how it makes him feel and how desperate he was not to go back, the walk to school feeling like every step came with a ton of concrete attached to us, each morning filled with tears and prising his little gripping fingers off of every available part of my body/hair/clothes. Both my husband and I would spend all day worrying ourselves sick about him, riddling our hearts with guilt-fired texts between ourselves about how he’s doing, what we should be doing, what other people think etc filling our brains with research, techniques, coping, ways to help him. It was driving us all in to the ground as we knew it wasn’t working. We knew it wasn’t right.

If it was happening to me…

The thing my husband and I both kept coming back to was it if was happening to either of us, we would be taking serious steps towards self-care, seeking support and trying to change our situation to get us out of something so emotionally toxic. A lot of the feedback we received however when talking about our son and his experiences of severe anxiety relating to school and social situations was that it was just a phase and that we should all have to persevere through it and wait for things to settle down. Kids will be kids and most of them don’t like going to school, they just have to suck it up. When you’ve already felt like you’ve been doing that for two and a half years, and your child becomes so ill with mental anguish that it physically alters their body, it feels like a bit of a kick in the teeth to say keep calm and carry on.

WHAT ABOUT FRIENDS?

In the fortnight we have been home educating, we have joined some smaller groups with children similar ages to our son. We have also been out to situations which would have been very difficult for him just a few short months ago. Having someone there in a smaller group to guide him with positive communication and social interaction is boosting his confidence above and beyond my expectations and it’s joyous to see. He handled a very loud and aggressive younger girl a few days ago with just a little guidance (and a cuddle!), I can 100% say a few months back this would have been a breaking point for him and would have ruined his whole day, possibly longer due to his obsessional thoughts. He bowled in to soft play with confidence and made friends with another boy his age, also on the spectrum, due to being allowed the space, time and freedom to do so. He is asking to do work rather than hitting himself in frustration. He is finding absolute happiness in learning and life right now and my heart couldn’t be more sure that we’ve made the right decision just by seeing this alone! Yet, we still have the odd few people claiming this isn’t right for him, mainly due to the fact he’s not away from us and with 29 other kids 9am – 3pm Monday – Friday.

This is an important decision and I can’t stress how much we have researched, asked for help, gone to meetings and courses, spoken with school and outside agencies and just tried to ‘wait it out’ before making our decision (and having school agree with us, which was really lovely actually) but I would always urge any parent of a child struggling with mental health, especially revolving around attending mainstream school, that possibly wants to think about home education or other alternatives but is too scared due to taboo and opinion, to consider that there are alternatives out there. You don’t have to just put up with a hard and potentially damaging situation for your family and your child if you feel it’s not right for you.

I’d like to add too that if you do choose to stay in school when faced with similar issues to us then absolutely all power to you, too. I feel no way is wrong, just like when handling adult depression, anxiety and mental health issues. One of the reasons we have a mental health awareness day is to be more open about what you’re going through and what works for you (as long as it is within the law, everyone is consenting etc) and to let others know they are not alone. It’s OK to feel like this and do something about it, It’s OK to feel like this and do something else about it. It’s OK. Lets all try and support each other in the way we’d love to be supported ourselves. Lets build ourselves and each other up instead of finding ways to pick on ourselves or those we deem weaker or wrong, less important or making different decisions to what we’d personally make.

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